Thursday, January 31, 2013

Comforted to be Comforters

I was not a member of a sorority in college. They didn't even have sororities at the nearly all-girl nursing school that I attended. However, becoming the mother of a special needs child, I joined a "sorority" of sorts. This was not a group that I ever had aspirations to be a part of, and it took me a few years to fully accept that I was a member of this group whether I liked it or not.

A long day of training in Dallas with another mother of a special needs child more than 13 years ago caused me to realize how very much I needed this connection with someone who truly KNEW what I was going through. It wasn't long after our first meeting, Marti and I began talking about the idea of starting a support group for other mothers of special needs children. This group called MOMS (Moms Offering Moms Support) is still going strong today, even though I am rarely able to attend the meetings.

One of the highlights of attending the CMN event last week (mentioned in my previous post), was reconnecting with several mothers who were a part of our MOMS group in those early years. I felt like I was at a family reunion, seeing members of my family that I had not seen in a very long time....I was so happy to see them! Even though we have not spoken in years, it felt like yesterday that we were sharing our struggles, hopes and dreams with one another. We were in the trenches together.

Sadly, two of these moms have lost their precious children since we last saw each other. Listening to their stories of how their children spent their last days was sad, but also full of hope. You see, both of these ladies have the assurance that their children are now WHOLE in every way and they will see them again one day. It was encouraging for me to see how the Lord has sustained these women and given them the strength that they've needed to go on. They are not just surviving, but they are thriving.

I was reminded of how much we women need each other. Two of my favorite Bible verses are 2 Corinthians 1:3-4 Praise be to the God and Father of our Lord Jesus Christ, the Father of compassion and the God of all comfort, who comforts us in ALL our troubles, so that we can comfort those in any trouble with the comfort we ourselves have received from God. We are not comforted to be comfortable but to be comforters!

Whatever you've been through in your life...the good, the bad, and the ugly...God can use it to minister to someone who might be going through something similar IF you'll let Him. With these thoughts fresh in my mind, a friend and I drove to Dallas today to spend some time with a special needs mom whose son is currently in ICU at Children's Medical Center.

Friday, January 25, 2013

Giving Honor to Whom Honor is Due

Last night was one of those nights that I didn't want to end. My husband can attest to this fact, as he practically had to drag me away from the festivities. It was a night for celebrating!

We were celebrating two very influential people in our lives....our children's Pediatrician Dr. Rick Rogers, and Shirley Gordon, the nurse who helped to pioneer the Special Needs Program at our Pediatric office.

The Celebration honoring Dr. Rick Rogers and Shirley was called "Miracles Begin With You!" and was hosted by a local Tyler family. It was a fundraiser to benefit the Children's Miracle Network of East Texas. CMN funds the Special Needs Clinic that Brianne has been a part of since she was released from the NICU in 1997.


To say that these 2 people and this program has been an oasis in our desert is an understatement! The Special Needs Program was designed in 1996 to provide "health care services which are family-centered, continuous, comprehensive, coordinated, compassionate, and culturally competent" for children with special health care needs and their families (taken from their Mission Statement).

Just a few of the many ways we have benefitted:

A compassionate, caring Physician and Nurse who have contact with all the different Specialists that Brianne sees, and they help us coordinate her services to ensure that there is no gap.

A lengthy annual appointment to go over all of Brianne's medications, therapies, treatments, and any new issues that may have arisen.

The ability to call a Nurse (who knows our special child) directly with a question, concern or need for an appointment without having to leave a voice message.

An annual picnic designed specifically for families with special needs children.

A connection with other special needs families in the East TX area.

A listening ear when no answer is needed...just an opportunity to vent.

I could go on...

But the greatest gift that we have received from Dr. Rogers and Shirley over these past 16 years is the gift of their friendship. These are 2 amazing human beings who know how to love well!! They work long hours and give of themselves continuously and often with little or no recognition at all!

So, Wade and I were thrilled to be able to join with numerous others last night to say, "Thank You for all that you have done!" "Your efforts have not gone unnoticed." "You have made a difference in the lives of us and our most precious posessions, our children!"



I can't believe that I didn't take more pictures last night. I didn't even take a picture of Dr. Rogers, so I had to dig through scrapbooks to find one of him with Brooke a LONG time ago! He is the Pediatrician for all 3 of our kids.

And the picture of Shirley receiving her balloon bouquet last night was taken with "Corn Pop the Clown."

Tuesday, January 22, 2013

A Day Late...

Yes, I know...Martin Luther King Jr. Day was yesterday...which is when I initially planned to write this blog post. My kids were out of school yesterday...need I say more???




So, here it is, a day late...a few of MLK Jr's great quotes.

“Nonviolence is the answer to the crucial political and moral questions of our time: the need for man to overcome oppression and violence without resorting to oppression and violence. Man must evolve for all human conflict a method which rejects revenge, aggression and retaliation. The foundation of such a method is love.” — From his Nobel Prize acceptance speech in Stockhom, 1964.

“I submit to you that if a man hasn’t discovered something he will die for, he isn’t fit to live.” — From a speech in Detroit on June 23, 1963.

“…And I’ve looked over and I’ve seen the Promised Land. I may not get there with you, but I want you to know tonight that we as a people will get to the Promised Land. So I’m happy tonight. I’m not worried about anything. I’m not fearing any man.” — Part of a speech in Memphis, Tennessee, on April 3, 1968, the day before he was assassinated.

“Injustice anywhere is a threat to justice everywhere.” — From “Letter from Birmingham Jail” April 16, 1963.

“Let no man pull you so low as to hate him.” — From a sermon he delivered in 1956.

“The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. The true neighbor will risk his position, his prestige, and even his life for the welfare of others.” — From his 1963 book, “Strength to Love.”

Taken from "The Epoch Times"

Friday, January 18, 2013

Oh, How the Mighty Have Fallen

I watched the much anticipated Oprah interview with Lance Armstrong last night. It was actually just the first half of her interview; the second half is airing tonight on OWN.


I was caught off guard by the feelings of grief that I experienced as I watched...knot in my stomach...lump in my throat...sadness...much sadness! Why was I feeling such grief for a man I don't even know? Not only do I not know him, but I wouldn't even consider myself a fan of cycling. I certainly admire the incredibly challenging sport that it is, but I've never watched more than a few minutes of any cycling race. We mostly watch and play sports in our home that involve balls.

I guess I was drawn to this interview, because I was curious to see if Lance Armstrong was in fact going to finally come clean and admit his wrong doing, or if he was going to continue lying and denying and blaming?? I was pleasantly suprised to see that HE DID in fact admit to doping over much of his career, especially as it related to his 7 Tour de France wins. And he was careful not to implicate or blame anyone else for his behavior. He took full responsibility for his actions! So, why was I so sad?

The phrase "Oh, how the mighty have fallen" continued to flash through my mind last night. I knew it was from the Bible, but I couldn't remember what story it was related to? I looked it up this morning, and was reminded that it came from 2 Samuel Chapter 1. It was David's Lament for Saul and Jonathan. I was reminded that this lament came after David was notified of the death of Saul and his son Jonathan (who also happened to be David's best friend). I can understand how Jonathan would have mourned for his best friend, but why Saul? King Saul had been chasing after David and trying to take his life for a long time...surely he must have felt some relief. Why was he grieved for Saul?

I think that part of David's grief for Saul may have been over what could have been. He was grieved over the wrong choices that Saul continually made...the choices that eventually led to Saul's demise. I think that David could see the incredible potential that Saul had. As the leader of Israel at that time, he was certainly in a position of godly influence. Saul had the opportunity to be used mightily for God's kingdom. But instead, he allowed disobedience, insecurity and jealousy...SIN to consume his thoughts and actions. First, Saul lost his throne (1 Samuel 15:23) and then he lost his life (I Samuel 31:4).

How do these 2 stories relate?

I think that my grief for Lance Armstrong is similar to David's grief for Saul. I see the incredible potential that Lance had for godly influence. Early in his career, Lance declared himself to be a Christian. He was an amazing athlete, he had a beautiful family, he had the accolades of multitudes, and yet by the sin choices that he made, he eventually lost it all.

There were numerous times along his journey that he could have come clean. The first time that he was accused, he could have used that as an opportunity for confession and repentance...or the second time...or the third time... Instead, he hardened his heart, and not only did he blatantly deny the charges, but he even filed lawsuits against the people that were telling the truth. He truly believed that he would never get caught.

How does a man come to this place?

Sin- We have an enemy of our souls that is constantly tempting us to sin.

Romans 3:23 tells us that "We all have sinned and fallen short of the glory of God."

1 John 1:8 says,"If we claim to be without sin, we deceive ourselves and the truth is not in us."

What do we do?

Repent- We must acknowledge our sin and ask for God's forgiveness. I also believe that this involves asking forgiveness from the ones we have sinned against.

1 John 1:9 says, "If we confess our sins, HE is faithful and just to forgive us our sins and purify us from all unrighteousness."

When I see a brother or sister in Christ fall in their sin, I am reminded of my own propensity for sin. I am asking God to continue to bring conviction into my heart where sin might be present, so that it does not grow!

Lord, help me to walk in your light every day!

Monday, January 14, 2013

A Stumble Down Memory Lane

In keeping with my commitment to continue de-cluttering my home in 2013, I decided to tackle Brianne's closet a few days ago. I must confess that I'd have rather gone to a GYN appointment than begin this overwhelming job...which is exactly why it has taken me so long to get started. However, I typically find that by making the decision to do something, and then beginning it, I will get a surge of energy to complete the task. "GIT 'ER DONE!" as they say in these parts.

This time was different...I would complete one task, and then just sit and stare at the mess...do another, and more staring...this persisted all day long! I began to wonder if this closet was ever going to get put back together?

"Why is this so difficult?" "Why can't I seem to decide what to keep and what to get rid of?" "What am I afraid of?" These are just a few of the many questions that I was asking the Lord throughout the process.

Why So Difficult?

You see, there are a lot of items stored in Brianne's closet that are not currently in use, but bring back many painful memories...memories that I'd just as soon forget! Oxygen tanks and tubing...feeding pump and bags...CPAP machine...syringes from numerous hospital stays...the preemie clothes that she once wore...It's amazing how the sight of these items can take me right back to that place. I feel the raw emotions, I hear the sounds and I can even smell the smells that were so much a part of our lives at that time.

What to Get Rid of, What to Keep?

With the unbelievable cost of medical supplies and the concerns about how the new healthcare laws will affect what our insurance provides, we have become very proficient in recycling items that can be used again. But when do we have enough? How much is too much? How far past the expiration date is it safe to use this? Will we ever need this again?

What am I Afraid of?

This is probably the most important question! To be honest, I am afraid sometimes! I am afraid that there will come a day in the future when Brianne will need these unused items once again. I am afraid that the relative health that Bri has experienced over these past several years will suddenly take a downturn. I know that this is not an irrational fear. Since last year, 2 of Brianne's sweet friends and classmates from school are officially "homebound" and have been added to the sadly growing list of "hospice patients." We have no guarantees that this will not one day be in our future, but we have no reason to believe that it will be in our future either. Basically, Bri's life is no different than ours...only God knows her future!

Got 'Er Done!

With much encouragement from the Lord, I did finally finish the closet project, and He reminded me of several promises in His Word that I can hang on to when I am tempted to "go there" in the future!

Worrying does not change my circumstances nor does it benefit me!
Matthew 6:25 - 34
This is a reminder not to worry about provision in regards to the future. Our responsibility is to seek first His kingdom and His righteousness, and His responsibility is to provide everything that we need!

His grace is enough for whatever I might face!
2 Corinthians 12:7 - 10
This is reminder from Paul when he asked the Lord 3 times to have the thorn in his flesh removed...But He said to me, "My grace is sufficient for you, for my power is made perfect in weakness."

Fear does not come from God!
2 Timothy 1:7
For God did not give you a spirit of fear but a spirit of power, love and a sound mind.

Remembering is a Good Thing!
Deut. 5:15
Remember that you were slaves in Egypt and that the Lord your God brought you out of there with mighty hand and an outstretched arm.
Psalm 77:11
I will remember the deeds of the Lord: yes, I will remember your miracles of long ago.

Wednesday, January 9, 2013

I'm Glad I'm not a Dog!

Sometimes the Lord speaks to me in the most unexpected ways. And yesterday was no exception. I was doing my typical 3:30 pm task of tube feeding Brianne, while she was watching another episode of "Clifford the Big Red Dog." We came in on the show a little late, so I'm not sure how or why Charley (Emily-Elizabeth's friend) had become a dog, but he was thrilled about his new status...especially when he found out that dogs can't go to school.


It didn't take long, however, for him to recognize the down-side of being a dog. He wanted to play basketball, but he couldn't get a grip on the basketball, and when he tried to use his mouth...well, you know the rest. His enthusiasm was once again dashed when he went to the soccer field to join in on the game, and Emily-Elizabeth notified him that dogs couldn't be on the field during practice.

Being a dog wasn't nearly as much fun as Charley had previously thought. And when he awoke from his dream to see his humanity in the mirror, he was so relieved.

How many times have I been like Charley? How many times have I thought that JOY could be found in another set of circumstances? In the early years of Bri's life, I helped to start a support group for moms of kids with special needs. I didn't realize at the time how much I needed that group to help me get perspective. I was swimming in a sea of self pity and pain! Seeing what other moms were walking through suddenly made my own experiences seem not quite so tragic. I remember leaving the group one afternoon and thanking the Lord for my situation.

I truly believe that the Key to not allowing ourselves to desire someone else's path in life is GRATITUDE. Lord, help us to be grateful for all of your blessings, as well as the grace that you give us to walk through the hard things.

Monday, January 7, 2013

Resolutions

When did "resolution" become such a bad word, (especially when it pertains to New Year's Resolutions)? I have been reading and listening to many people's views on this annual tradition over the past week. One of the DJ's on our local Christian radio station called it the "R word" and wouldn't even say it out loud.:) I heard someone else say that the definition of a New Years Resolution is a 3 week long list.

Yes, it is true that many of the things that we resolve to do, begin, and accomplish in the new year may never happen but what about the changes that do happen??

Wade and I typically have a "Get away" in January, as January 31st is the end of the certification period for Brianne's respite nursing hours. We will lose what we don't use, so of course we do our best to spend each and every one of these precious moments. We use this time away to look back at our "resolutions" from the past year, and see how we did. But we spend the majority of our time looking ahead and planning for the new year. We invite the Lord to be a part of our planning, and we spend time praying and asking for His wisdom.

I can sometimes become discouraged by the things that I had every intention of accomplishing but never did. But I am always encouraged by those few decisions that I made that I actually stuck to, and have become a part of my life now. My husband likes to say "If you aim at nothing, you'll hit it every time!" So friends, let's aim at something new this year.

Many people focus on their physical health this time of year and join a gym or start a new diet. But let's not forget about our spiritual and emotional lives. What decisions do we need to make in those areas? Read through the Bible this year? Memorize one Scripture each month? Get more sleep? Make a "date" with a kindred spirit friend to get together every other week? Whatever you decide to do, WRITE IT DOWN or tell a friend, so that you have some accountability.

Statistics say that it takes 3 weeks to establish a habit, so if you start today, by the end of the month, you just might have a brand spankin' new habit! I'd love to hear from you as to what you are resolving to do this year!

Saturday, January 5, 2013

A Mother's Love

We went to see "Les Miserables" last night. After reading so many positive comments about it, I could hardly wait! Our dear friend, President and CEO of World Relief, Stephan Bauman, had tweeted on Dec. 31st "Three times I wanted to kneel on the popcorned theater floor. The Gospel according to Victor Hugo." I concur, it was a spiritual experience!

There were so many inspirational scenes in the movie, and so many great messages about mercy, forgiveness, redemption...I could go on. But the part that moved me the most was the love of a mother. Anne Hathaway plays the part of Fantine, and there is nothing that this mother will not do to care for her little girl Cosette. There is a scene in the movie where Fantine is selling her hair, and even a tooth to feed her daughter another day. Love is an incredibly powerful thing!

I thought about how much I love my children. I love each of them equally, and it doesn't matter that only 2 of them are able to tell me verbally how much they love me back. The love I have for my children didn't come from me. I believe that God gives us a glimpse of His love by placing in our hearts a love so fierce that we would take a bullet for any one of our kids.


For God so LOVED the world that He gave His only begotten son... John 3:16

Greater LOVE has no one than this, that one lay down his life for his friends. Matt. 15:13

Friday, January 4, 2013

Good Things Come to Those Who Wait

I got a Keurig for Christmas!! I love it!! Our bosses at work got one for the office gift, and I was telling Wade how much I love it. He tucked away that little nugget of information and shared it with my brother and sister-in-law and mom and step-dad when they inquired about what I might like this year. I was so suprised!



I've been pondering what it is about this handy appliance that I like so much? After all, I already have a tea kettle, a coffee pot, an espresso machine, and no more room on my counter. Before the Keurig, I was able to make every beverage that is offered in these cute little K-cups. I have discovered that what I LOVE most about my Keurig is how quickly I am able to enjoy one of these tasty beverages. Literally, in a matter of seconds, I am able to enjoy a fresh brewed cup of coffee.

Have you noticed that we are not very good at waiting for anything? We have drive- through restaurants, banks, pharmacies....and I recently even heard about drive- through churches. Wow! Isn't that missing the point of "not forsaking the assembling of yourselves together?"

I am not very good at waiting! We parents of special needs children know a little something about waiting. I've often made the comment that "If I had $1 for every hour I have spent in a waiting room, I'd be a rich woman!" I guess we shouldn't be suprised. They are, after all, called "Waiting Rooms" aren't they? I'd prefer to call them "Torture Chambers." If you're not sick when you get there, chances are that you will be when you leave.

God has something to say about waiting...there is great value in waiting!

"Yet the Lord longs to be gracious to you; He rises to show you compassion. For the Lord is a God of justice. Blessed are all who wait for Him." Isa. 30:18

"They that wait upon the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not faint." Isa. 40:31

"I am still confident of this; I will see the goodness of the Lord in the land of the living. Wait for the Lord; be strong and take heart and wait for the Lord." Ps. 27:13,14

There are some things that I've been waiting for a LONG time. And some of them I might not see happen this side of eternity, but I will continue to wait on the Lord. And I will trust Him to give me the grace to wait!

Wednesday, January 2, 2013

Taking Things for Granted

6 days ago Wade and our 2 youngest children took their annual flight to NC to spend some time with his family after Christmas. Brianne and I join them every few years, but it is too expensive and too much work to travel with her every year, especially at the height of flu season.

This particular trip has been more challenging than some, as Bri was diagnosed with a respiratory infection the day before they left. This was secondary to having had the flu the previous week. All 3 of our kids got the flu this year, and all 5 of us have had one or more illnesses over this holiday season. Uggghhh!!!


All of this sickness took me by suprise, and I did something that I said I would never do in the early days of Bri's life. After numerous trips back and forth to the hospital with Bri, I told the Lord that I would NEVER take our health for granted again. I would thank Him daily for my health and the health of my family.

Isn't that human nature? When we receive something that we have been asking the Lord for over a long period of time, we have so much gratitude, and we think that we will always feel grateful. But after some time has passed, the "feelings" start to wane, and we find ourselves taking that very thing for granted. Help us Lord!

The other thing that I have taken for granted is my amazing husband. He is such a help with Bri's care that I had forgotten what it was like to have ALL of her care to myself...all those little things that he does for her without drawing any attention to himself. I have realized once again how blessed I really am, and I'm asking the Lord to help me remember this when I'm tempted to fall back into my old ways.



I have also spent some time praying for my friends who are single parents, especially those who are single parents of a special needs child. What a HUGE job they have! Dear Lord, please provide some respite for them! Provide a group of people who will help carry their burden.

Wade and the kids get home tonight, and I pray that I can apply the things I've learned over this little "staycation."

Tuesday, January 1, 2013

New Beginning

I can't even count the number of times that I've thought about starting this blog. I even went so far as to create a template several months ago, but after a friend began her new blog using the same template, I once again abandoned my efforts...lame excuse...I know!

The wonderful thing about our calendar year is that we get to start over every January. So, on this first day of 2013 I will begin again! I will create a new template. I will place my first blog post on my new blog. I will not place too many expectations on myself to begin with. I will attempt to post something on a regular basis, but I know that I won't be able to do it daily...too much pressure!

My initial desire to write a blog was birthed out of a heart of compassion for other mothers of special needs children. I wanted to be an encouragement to them on their difficult journey because I KNOW what they are going through. But the older I get, the more I realize that there is far more that unites us as women than divides us. And because I am not only the mother of a special needs child, but also of 2 healthy children, I will post about all of the above.

2013 is a new beginning. I hope that today you will take action toward something that you have been intending to do for a long time as well!